MINOOKA, Ill. (AP) — Bill Swick has a rare degenerative brain disease that affects his mobility and speech. Rather than traveling to a clinic for speech therapy in downtown Chicago, he has relied on virtual appointments from his home. However, for the last month, these appointments have ceased due to the ongoing federal government shutdown, which halted funding for the Medicare telehealth program.

At 53, Swick, who suffers from corticobasal degeneration, struggles with language processing and speech timing. Frustrated by the interruption of his treatment, his caregiver wife, Martha, expressed concern about the setbacks to his progress due to the halt in therapy: Everything has a hitch, and we have to stop and wait.

This situation mirrors the experience of millions of patients on Medicare fee-for-service plans who have depended on telehealth services since waivers were expanded during the COVID-19 pandemic.

The government shutdown, now running into its fifth week, has halted the funding that many medical providers depend on for telehealth. Providers face the risk of continuing these vital services without guaranteed reimbursement, leaving many patients with chronic conditions vulnerable.

Experts warn that missed appointments can impede progress for individuals with dementia and other degenerative diseases. The frustration and potential regression felt by patients like Swick highlight the dire need for a resolution on Capitol Hill.

The telehealth program was expanded in response to the COVID-19 pandemic in 2020, allowing more flexibility for virtual visits. However, negotiations for funding have stalled, leading to renewed discussion about the need for legislative action.

As Congress continues to grapple with a budget agreement, many patients are left without access to specialists, putting their health and well-being at risk. Caregivers are stepping in to perform exercises and manage care, but they express the urgent need to resume professional support to ensure their loved ones receive the therapy they need.

Health professionals emphasize the importance of these services, highlighting that the lack of access can lead to increased social withdrawal, depression, and other health issues. Martha Swick voiced the imperative for a timely solution: I’m just doing what I’m able to at home... but eventually I’m really going to need those appointments to come back.